At about noon tomorrow, Monday, Liam will have a cardiac catheterization to take accurate readings of the pressures in his heart, veins, etc. Its about a four hour procedure and he will yet again be under general anesthesia. We signed all the consent forms tonight and while we are scared for him, we are very hopeful that this will result in answers. Just pray it won't take a further toll on his body and recovery.
He has taken a beaten the last few days as the doctor told us tonight so we hope this procedure will be the beginning of the answers and a treatment plan. They can't even find a place to draw blood from anymore. When you see your 10 week old's arm covered in bruises that look like a cigar burn, we appreciate those first sleepless nights of our inconsolable newborn more and more. I wish that was the worst of our issues! Apparently, we hit yet another rare column to mark off with the chylothorax complication. We just want Liam to be healthy again and it looks like it will be a timely process to treat the chylothorax after it is determined why he is leaking this fluid.
Both chest tubes are draining a ton of fluid but most of what is coming out now is what they are putting in. I was amazed at the number of IVs and tubes today, well overwhelmed, and recalled that before last Tuesday, he had had only one infant dose of Tylenol for a slight fever before this began! In other news, his original incision from the open heart surgery is basically healed. Little man continues to fight back to the nurses and doctors, love that he tried to pull out his tubes today.
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I have learned so much on helath issue since all these began. In each challenge, we will grow with it.Our prayers are with you all. I can come during the week if you need me. Grandms Liming
ReplyDeleteThinking about you guys this morning. I hope the procedure goes well and that you all get some much-needed answers.
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