OHS #2

This is not a post we thought we would be writing. The cath showed that the small residual hole they left behind which typically balances out the two chambers has gotten bigger, most likely the patch tore because his pressures were too high. Those pressures are still too high and is causing all the fluid issues and everything else we have seen since Wednesday.

They called our surgeon who is traveling and he thinks Liam is stable to wait until he returns on Wednesday so he can do another open heart surgery to fix the tear. He knows where everything is, why things were done a certain way, etc If something changes between now and then, one of his colleagues will operate immediately.

While this seems like a set back, it is an answer, something we haven't had in almost a week as we have watched our son get worse without cause or knowledge to effectively treat it. Without this procedure, the worst would happen. The risk of not doing the surgery outweighs the risk of the current day to day care. We are both pretty calm and almost excited to see our little guy be himself hopefully by the end of the week. I dread handing him over again but he needs this surgery and I want him to thrive.

Thank God they found the issue and were able to point to something directly and say this needs to be fixed. We were told that would likely not happen. The power of prayer is on our side and that will help us all get through this chapter. Thankfully, only Alex and I will remember this time.