Wednesday, October 20, 2010

Emma Grace

There are moments I'm beyond grateful for Liam- this morning is one of those. When I signed on to Facebook, one of the good CHOP friends I made posted an article about a little girl who passed this weekend. Her mom first met my mom while we were at CHOP, she was on the phone with social security trying to explain that she wouldn't leave her daughters side to get her a card and was pretty upset. Christina was feisty and I appreciated that when everything else seemed out of control, it was nice to know you can be still.

When I went back for Liam's follow ups, we sat together a few times for a few minutes and we talked about Emma and Liam. Their lives were so connected yet so different. Her Mother's Day gift was being able to take Emma outside to have fresh air. For the first time..Emma was 8 months old.

She is really one of the stronger people I met and her daughter Emma obviously got her fight from her Mommy. Christina needs your help- if you have a few dollars to spare, another CHD parent has begun a fund to help pay for the funeral costs.

Here are links to the article and fund. Please remember Emma and her family in your prayers.

http://www.delcotimes.com/articles/2010/10/19/news/doc4cbd07a47e27f105263195.txt?ref=nf

http://levibeers.com/2010/10/18/help-needed-for-baby-emma-graces-funeral-costs-please-share/

Wednesday, October 6, 2010

CHOP Walk Pics




It was a great event- sunny but breezy, sometimes cloudy but lots of fun for the kids. The Star Wars characters came, Elmo and the Phillies Phanatic, whatever he is. We raised over $3000, had a team of about 20 and played raffles, the kids played in all the games from Abby checking out the Tot Land and Tommy and Sean playing soccer. It was really special to see so many kids, DS or not, playing together.

Here are some of our pics from the event! Thank you to all who came out, donated and kept us in your thoughts!