Healthy Heart Day!

Happy healthy heart day to all! Alex left this morning to head back to work, but shoveling out at home first and giving our amazing neighbors, Dave and Lauren, a break from being adopted dog parents. It will be good for Ike and Penny to have Alex there to spoil them a little.

Liam is doing well, his oxygen came completely off yesterday! He has been keeping his levels up so far and is tolerating it well. He is on full feeds through a feeding tube in his nose of a special formula that is helping with what type of fluid he is draining, however, Liam has been pooping more than he is draining now. His tummy is talking to us quite a bit, he is not happy with this gas issue. Its expected though, its the first time in 3 weeks he has had food in his stomach. Hopefully in a few days, that end of things calms down. Alex hopes so too..since Liam had a blow out on him Thursday night. It was the first time in a long time I laughed until I cried. Even the nurse joined in too.

His draining has turned around so much in the last few days. A week ago, he had between 900-1200 ml out of his chest. Yesterday, just 300 all day. His heart rate has risen a little bit overnight and the doctor seems to think its just because he is getting dry because of the drainage. They increased his fluids for a few hours and that helped his heart rate come back down. He literally is only getting one fluid in other than food, and a little baby Valium, but nothing else. Two weeks ago, he was on over a dozen infusions consistently and had 4 IVs on every hand and foot. My little man has one that is used only a few hours a day and is otherwise, feeling good.

I could ask for nothing else but a healthy heart baby and I got my wish..we are getting closer to getting his chest tube out. Hopefully over the next few days we will see no drainage and they can take it out. Can't wait to rock him to sleep against my chest when that happens. Its his favorite position and its been a while since he was allowed that. I must admit, Liam is going to be one spoiled kid..but he deserved it. Love to all of our friends and family, enjoy today and don't forget, its CHD Awareness Week and Heart Month!