A quick update- had Liam's pediatrician appointment yesterday and it couldn't have gone better. He gained 11 ounces in a week- dear Lord- and is now 7 lbs, 9 oz. That also moves him up on the growth chart to the 25% line. It will mean he will probably be about 10 and a half pounds at the time of his surgery. His oxygen levels were great, 88-92. The doctor was so impressed with him yesterday she gave us 2 weeks off! The next appointment we have is his 2 month check up/vaccines and then as long as he has steady weight gain of 4 oz a week over the next two, we probably don't need to come in very much at all! Liam hits the 6 week mark tomorrow which means I can begin taking him out, occasionally, not a lot. We still need to keep him home for the most part until surgery but the first 6 weeks were the most dangerous of getting infections and he is doing well, with the occasional congested nose. Head's up, Fair Oaks Santa, we will be the first people in line tomorrow!
We talked about his post op care and that too is a lot better than what we had thought. Once we are discharged from CHOP, we will need to do a follow up with our cardiologist about a week later. Our cardiologist will monitor Liam, particularly based on the medications he will be on. Once that piece of it is over, perhaps a few weeks of care, we won't need to see the cardiologist except every 4-6 months. The pediatrician will make sure his wound heals well and then it will only be his normal well visits. So by April, we can be a normal infant schedule and as soon as his wound his healed, he will be like every other almost 6 month old. So excited! It will be a Merry Christmas and New Year indeed...
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